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Observational Research –ABSTRACTS – PHAROS
    1. Huntington Study Group (E Kayson, presenter). Preliminary report of the safety and feasibility of a controlled observational study of adults at risk for Huntington’s disease (PHAROS). Proceedings of the 19th International Meeting of the World Federation of Neurology Research Group on Huntington’s Disease, August 25-28, 2001, Copenhagen, Denmark. Publication of the Panum Institute, p. 30, 2001. see link
    2. Huntington Study Group (E Kayson, presenter) Safety and Feasibility of the Prospective Huntington at Risk Observational Study (PHAROS): A Preliminary Report. Neurol 2002;58(Suppl 3):A334-335, abstract #S46.005. see link
    3. Huntington Study Group/PHAROS Investigators (E. Kayson, primary author). Safety and feasibility of the Prospective Huntington At Risk Observational Study (PHAROS): A progress report. Accepted for presentation at the World Congress on Huntington’s Disease, August 16-19, 2003, Toronto, Ontario Canada and published in the program booklet of World Congress on Huntington’s Disease, Abstract #70, page 70, 2003.
    4. Huntington Study Group/PHAROS Investigators (K. Biglan, primary author). Emerging cohort characteristics in the Prospective Huntington At Risk Observation Study (PHAROS).. Accepted for presentation at the World Congress on Huntington’s Disease, August 16-19, 2003, Toronto, Ontario Canada and published in the program booklet of World Congress on Huntington’s Disease, Abstract #81, page 73, 2003.
    5. Kayson EP, Huntington Study Group/PHAROS Investigators. The welfare of research participants in the Prospective Huntington At-Risk Observational Study (PHAROS). Mov Disord 2004;19:9:S352.
    6. Huntington Study Group PHAROS Investigators (Kayson EP, presenter). The Features and Well Being of the Prospective Huntington At Risk Observational Study (PHAROS) Cohort. Accepted for presentation at the Hereditary Disease Foundation Summer Symposia (Cambridge, MA, August 2004).
    7. Huntington Study Group (HSG) PHAROS Investigators (Shinaman A, presenter). Willingness to Consent for Future Use of Biological Specimens in the Prospective Huntington At Risk Observational Study (PHAROS). Accepted for presentation at the Hereditary Disease Foundation Summer Symposia (Cambridge, MA, August 2004).
    8. Kayson E, Darnell M, Weber J, Biglan K, Shoulson I, and the Huntington Study Group PHAROS Investigators. Depression and Suicidality at Baseline in the Prospective Huntington At Risk Observational Study (PHAROS). Mov Disord 2004;19(9):1128.
    9. Kevin M. Biglan and PHAROS Investigators. Baseline Characteristics of the Prospective Huntington at Risk Observational Study Cohort. Annals Neuro 2004;56(8):S24.
    10. Elise Kayson, Elaine Julian-Baros, Christine Weaver, Aileen Shinaman, Connie Orme, Joseph Weber, Susan Daigneault, Anne B. Young, Ira Shoulson and the Huntington Study Group (HSG) PHAROS Investigators. Recruitment Strategies for the Prospective Huntington At Risk Observational Study (PHAROS). Published in the program booklet of Huntington Study Group 12th Annual Meeting 2004, Abstract # 8.
    11. Huntington Study Group PHAROS Investigators (Shinaman A, presenter). Willingness to consent for future use of DNA collected in the Prospective Huntington At Risk Observational Study (PHAROS). Mov Disord 2006;21(9):1555-1556.
    12. Marder K and the Huntington Study Group PHAROS Investigators. Cross-sectional assessment of diet in individuals at risk for Huntington’s disease (PHAROS). Neuro 2007;68(Suppl 1):A230.
 
 

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Columbia University Medical Center : Department of Neurology : Last updated 27-Jun-2009